Press release 9 November 2011
Finland's Ombudsman for Children, Maria Kaisa Aula, considers
Finland's current disability policy to be too adult-centred. She is
pressing for greater progress in the co-ordination of the Services
and Assistance for the Disabled Act and the Act on Special Care for
the Mentally Handicapped, and demanding incorporation of the child
and family perspective in the new legislation.
"A child impact assessment must be performed on the new
legislation. We must ensure that children with special needs and
their families obtain the necessary support and services regardless
of where they live," says Maria Kaisa Aula.
Professional practices and attitudes also affect the everyday
lives of disabled children, apart from the legislation. "Children
are often seen primarily as targets for services that are
determined by their various diagnoses. A child with special needs
should be seen first as a child - a child with the right to live,
participate, make friends, learn and play as appropriate for the
child's age," says Maria Kaisa Aula, with emphasis.
Over the period 2009-2011 the Office of the Ombudsman for Children
mapped the rights of disabled children and children with special
needs, and monitored the development of disability policy. This
work has now been compiled in a publication in Finnish entitled
"Erityistä tukea tarvitseva lapsi on ensisijaisesti lapsi" ("A
child with special needs is first and foremost a child"). The aim
is to give impetus to the mainstreaming of children's rights as
part of Finnish disability policy.
The Ombudsman for Children is demanding greater overall clarity in
the organisation of services. Adequate support for everyday life
must also be provided for parents, along with expert counselling on
how to find the services to which they are entitled.
Informal care must be developed into a genuine alternative for
families with disabled children. The child-friendliness of
hospitals must also be increased and developed as part of the
co-operation between the authorities and actors in the field.
Anne Hujala, Senior Officer from the Office of the Ombudsman for
Children and the publication's editor, reminds us that daily life
for a family with a disabled child should be the same as in any
other family. Obstacles to a disabled child achieving a
well-balanced life must be cleared away. This includes anything
preventing the right to participate in issues that concern oneself.
"Participation for disabled children must confirm and create
opportunities for the children to give feedback on the quality of
services," Anne Hujala points out. "The children must also receive
information on services that they can understand, including the
legal protection they are entitled to."
The UN Committee on the Rights of the Child has repeatedly
demanded that Finland improve the collection and publication of
information on the implementation of the well-being and rights of
disabled children. The Ombudsman for Children is of the opinion
that research on disabled children and youth must also become a
regular feature in Finland, so that better information on the
well-being of children might provide a more solid foundation for
the work on reform.
"A child with special needs is first and foremost a child.
Children's rights as part of disability policy" (in Finnish),
published by the Office of the Ombudsman for Children, can be
downloaded at:
http://www.lapsiasia.fi/c/document_library/get_file?folderId=2835211&name=DLFE-16630.pdf
Further information:
Ombudsman for Children
Maria Kaisa Aula
+358 9 160 73985
+358 50 530 9697
mariakaisa.aula@stm.fi
Senior Officer
Anne Hujala
+ 358 9 160 73991
anne.hujala@stm.fi
lapsiasiavaltuutettu
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